developed Early Stage Lymphedema right after my 1st Lumpectomy Surgery, and a Total Axillary Node Dissection of 24Nodes removed with 5%found in My Sentinel Node which is the watchdog of all Nodes, and 5%in my Right Axillary Node without any extracapsular extension, no breakthrough of Nodes!
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IMy RT Arm is always Heavy, but not swollen, it feels like I am carrying a heavy Rock in my armpit, all day long!I had a second Lumpectomy, and Radiation of 2months, which made my RT Arm heavier, but still not swollen! I have been going to a Physical Therapist, who specializes I Lymphedema, and I went to Occupational Therapists who specialize in Lymphedema too, and they do Wrapping of the arms, and Manual Drainage! I have been getting Manual Drainage for the past 11years!I was told to wear Compression sleeves with gunlets, or special gloves, only when I exercise, lift heavy things, and when I go on a plane because if an increased air pressure!My Lymphedema Therapists says that all women can get Lymphedema, swelling of the Arms even if she or he had s Lumpectomy, or Mastectomy, when there is even 1Lymph Node removed, usually the Sentinel Node because they test this Node for Cancer, and how far the Cancer has spread. I have Lymphedema for the past 11years!I take Selenium, go to the Lymphedema Therapist for Manual Drainage, and go to a Chiropractor, for Cold Laser Light Therapy, Class B, 1x a week now, and I was going 2x a week for 18months! It helps with the pain!Also, I have Post Breast Pain Syndrome, from a lot of scar tissue in my Breast tissue from the 2 Lumpectomy Surgeries, and Radiation, for which I take a small dose of Ativan at night which helps, and I get the Lymphedema Message in the Chest, which helps too! Superhero and that how I beat breast cancer. I have to live with all this in order to survive! You cannot get blood drawn, or any IV’s or vaccines ever in your arms that have nodes removed!
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I had a friend who had all her nodes removed from her both arms when she had a Double Mastectomy, and Radiation in one arm, she could never have blood is drawn or Any Vaccines, or any needles because she had Lymphedema in both arms and had to wear 2 compression sleeves all day long, and she had to fight all the time to get blood pressures in her thighs, and blood was drawn in her Feet only! I forgot to mention I cannot get any needles in my rt arm, or vaccines or blood pressures either in that arm, only in my left arm! Many Physicians, Nurses, Lab Techs, and other Health Professionals need to be taught about Lymphedema. When I worked as a nurse before I got Breast Cancer aI never really understood Breast Cancer, and Lymphedema like I do now,!! I sure learned a hard lesson, and I teach other Breast Cancer Survivors too!Sadly my friend died of Metals Breast Cancer with living with it for over 20years! She also had it 5years earlier too!My Surgeon said if I did not have all my treatments I would have lived only 2-4*months and that was 11years ago!What Prices we all have to pay to Survive!